Transplant and what-nots
After mibg therapy in September, Cooper did another round of the usual tests in addition to a kidney test. His ct scan showed very minimal change. His bma showed no decrease but an increase in the percentage of what was infected. As far as could tell the mibg, radiation therapy, did not show any signs of being effective. His kidney test so that they were working at only 77%. So as a result the doctors were unclear on whether to move forward to transplant. After discussing options with the doctor from San Francisco they decided it was probably best to move forward after all.
On November 9th Cooper was admitted to start his round of chemo. On the 12th, Cooper had his stem cell transplant. All went well. Things were looking really good. Counts had no problems recovering. Cooper did have some trouble with the ng tube though. He ended up throwing it up twice. Finally they just decided to leave it out. Docs said once he started eating and drinking that we would be able to leave the hospital and a week later go home. This was only 2 weeks after transplant. Then after a couple days of not wanting to do either, his stomach started to swell. Two ultrasounds later they are saying its v.o.d. Veno-occlusive disease. Its where there is blockage of veins in the liver. As of today his stomach is pretty large and his biliruben is at 1.4
Hopefully this will be gone sooner rather than later and we will be on our way to have radiation at scott and white. As I know more I will try to continue to update the site. Thank you to all who are praying for our little one.
Dear, Sweet, Cooper,
hugs and kisses xoxoxox
McKenna and Emily miss you very much. We think of you all the time. How is that zhu zhu hamster? Have you slept in that big tent lately?? We pray for your healing dear Cooper…we love you all the way from Fort Worth Texas
McKenna says to tell you that she thinks you are looking incredibly handsome ….xoxoxox
Mom, you are a beautifully strong angel, one of God’s finest, to have such strength and courage and a wonderful child like Cooper. God Bless you and your entire family..may He continue to provide you with the strength you need to persevere..The Moodys
God Bless you all, we love Cooper and pray for his healing…The Moodys